Short Update:
Hannah and I made the trek to Mayo early on Sunday due to the storm headed that way. It was a good choice, as Rochester got 10.5-12 inches overnight. Hannah's post-op check went well, I will be able to change the g-tube at home from now on. Her white blood count is still too high, but the surgeon believes it is related to inflammation in her belly rather than an infection. No more meds for the infection, but we need to keep a close eye and watch for fevers and pain, etc.
Hannah is doing well with her feeds and we are about ready to switch over to just bolus feeds! Soon we will sleep all night long!! YAY!
Tuesday, March 12, 2013
Tuesday, March 5, 2013
03.05.13
Thanks to a snow day, I now have some time to update our progress since settling back in at home.
Thanks to the feeding pump, Hannah is getting enough to eat each day, though it does mean having to run a slow flow overnight. I'm looking forward to working up to eating enough during the day in order to cut out those night feedings (and maybe get a little more sleep in this house?). We are still cautiously increasing daytime feeds to meet our goal.
The stomach bug that has hit hard this winter finally made its way to our house. Thankfully, Will and I escaped, but let's just say it was a 'poopy' last week around here:)
We head back to Mayo on the 11th for a post-op check and another blood draw- as of Feb. 28th, Hannah's white count was still high at 16. In the words of the surgical doctor team, 'We sure aren't moving mountains, are we?'. The lead surgery doctor did say that as long as it's slow and steady, we shouldn't have to make alternative antibiotic plans.
Now that we are home, I find myself thinking often of our friend Riley, who is still in the therapy unit at Mayo. She is an inspiration to me and I pray to keep the courage that she has. The only plus to making a trek back to Rochester this month is the hope of getting to see Riley! Riley brings out the best in Hannah- she's always willing to share a smile with her:)
The biggest news since we've been back is that my wonderful team of co-workers at Mount Vernon are planning a benefit for Hannah. I know I've said it before, but I'm blessed to work in an environment that treasures my children as their own- people with such big hearts and love for our family. The benefit will be held on April 12th, from 5-8pm. There will be dinner, a family dance (I'm so excited to see my students boogie down!), a photo booth, and a silent auction.
Thanks to the feeding pump, Hannah is getting enough to eat each day, though it does mean having to run a slow flow overnight. I'm looking forward to working up to eating enough during the day in order to cut out those night feedings (and maybe get a little more sleep in this house?). We are still cautiously increasing daytime feeds to meet our goal.
The stomach bug that has hit hard this winter finally made its way to our house. Thankfully, Will and I escaped, but let's just say it was a 'poopy' last week around here:)
We head back to Mayo on the 11th for a post-op check and another blood draw- as of Feb. 28th, Hannah's white count was still high at 16. In the words of the surgical doctor team, 'We sure aren't moving mountains, are we?'. The lead surgery doctor did say that as long as it's slow and steady, we shouldn't have to make alternative antibiotic plans.
Now that we are home, I find myself thinking often of our friend Riley, who is still in the therapy unit at Mayo. She is an inspiration to me and I pray to keep the courage that she has. The only plus to making a trek back to Rochester this month is the hope of getting to see Riley! Riley brings out the best in Hannah- she's always willing to share a smile with her:)
The biggest news since we've been back is that my wonderful team of co-workers at Mount Vernon are planning a benefit for Hannah. I know I've said it before, but I'm blessed to work in an environment that treasures my children as their own- people with such big hearts and love for our family. The benefit will be held on April 12th, from 5-8pm. There will be dinner, a family dance (I'm so excited to see my students boogie down!), a photo booth, and a silent auction.
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