Another eventful day...This morning we met with the swallow study doctors to prep for the FEES study this afternoon. We then met with a physical medicine and rehabilitation to discuss Hannah meeting milestones and an overall discussion of her progress since she's left the hospital in November. It was encouraging to know that she is meeting her milestones, even if it is slow going.
Our afternoon was spent with a sleep study consultation and the FEES study. The consultation went well. Despite Hannah's lasting cold symptoms, we are still going forward with the sleep study tonight. As far as the FEES swallow study- fail. Hannah did not appreciate the camera down her nose (I am on her side on this one...) and after only a few swallows they stopped the study. The doctor decided to halt all oral intake until we can determine feeding aspiration by a different means. So, while this means less barf on me, it is a concern that she will regress on the what progress she had made in her swallowing abilities.
We are now back at our hotel for dinner and then we will head back downtown for tonight's sleep study.
On a happy note... Hannah was all smiles today (except for the camera in her nose bit). She is a happy, beautiful little girl who knows just when a grin is needed to brighten spirits. The doctors who saw her during our last stay are happy to see her growth over the past month. And, last but not least, we are #4 on the Ronald McDonald waiting list and should have a new roof over our heads tomorrow evening:)
Perfectly put by an amazing friend, "Praise God. Lay all of your troubles on Him."
We are keeping good thoughts for good news and a good weekend at Mayo.
ReplyDeleteSending lots of love your way. Charlie is waving to the picture of Hannah :)
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