01.19.13

Just a quick update to share tonight. Last night Hannah had her sleep study, but it didn't go well. The air in the room was really dry and it made it hard for me to breathe right, and even worse for Hannah. I didn't think that her sleep last night was a very good representation of her normal routine sleeping. She was also covered in probes (about 10 on her head and another 10 placed around her face and body) and had a breathing tube set in her nose to monitor breathing difficulties. The nurse was in a lot to check on her and re-position any probes that weren't picking up enough signal, so there wasn't much sleep. Overall I am interested to find out if Hannah slept well enough and deep enough to get a good read on her sleep patterns.  

Today was spent with Will and Eli. We also moved into the Ronald McDonald House and used their free Rochester Children's Museum passes to take Eli out on the town. We also took him to the Ramada for an evening of swimming and pizza- though I think the pizza part pleased Will more than Eli...

We are looking forward to more family time tomorrow:)

Eli painted his own face at the Children's Museum...the next Picasso?