01.21.13

Today was a day of waiting. We checked in this morning for Hannah's biopsy and PH Probe placement. The look at her lungs showed what the pulmonary doctor had previously thought- that there is a bit of lung disease in the spot he saw on the CT scan. What they did learn is that they believe the spot is relatively new or at least an ongoing problem, so Hannah will be cut off from any oral feedings at this point. 

Tomorrow the PH Probe will be pulled and data will be collected to see what if any reflux is happening, and based on the outcome, we will decide where to go next. No reflux means no surgery, and our fingers are crossed!

Unfortunately, Hannah is a bit of an escape artist and because of this, she has to wear 'no-nos,' arm cuffs that prevent her from moving or bending her arms and whipping out her nose tube. She's not happy about it, but she's still cute:)