No news is good news.
Thankfully, I have very little to share tonight. Today was a relatively quiet day- the only heartache being that we had to move another IV. The PTN and lipids are just so hard on veins that they do not last long after running nutrition through them. We were able to get enough formula through the G-tube today (and Hannah handled it well) that we cut off the nutrition and will supplement with fluids until she's up to enough through the G-tube to meet nutrition needs.
Tomorrow we will try a bolus feed (cut off the continuous feeds for three hours and try to do an all-at-one-time feed). If this goes well, we will just keep increasing until we think it's too much. If we can hit goal, we can ditch the IV all together! This morning the surgeon suggested that we try to do continuous feeds overnight at home until Hannah's stomach is big enough to handle larger amounts. When we went home with the new G-tube the first time, I was getting up 3 times a night. It took a bit of a toll, but this time would be even more often than that. I'm thinking that pump feeding at night might be the best option just until we would be back down to 2-3 feeds a night.
Tomorrow morning will be the last (fingers crossed) blood draw to check white blood cell levels. If it's gone down, that means that we won't have to worry as much about infection getting worse. We haven't had a fever since yesterday!
Things are getting better. Tonight should be our best night yet for sleep- with less lines hooked up, we will have fewer alarms dinging. Hannah has already crashed for the night- the first night in a long time that she has been comfortable enough that I could rock her to sleep. No sweet smiles yet today, but I have a good feeling about tomorrow:)
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